Perinatal palliative care: a comprehensive approach

Main Article Content

Ignacio A. Ricaud Vélez
https://orcid.org/0000-0002-2676-5525
Inés Hanhausen Estrada
https://orcid.org/0000-0001-6807-4231
Santiago Phillibert Rosas

Abstract

Perinatal palliative care emerged as an essential measure to comprehensively address the treatment of neonatal patients with prenatal or perinatal diagnoses of severe life-threatening illnesses. This care is aimed at newborns suffering from conditions that prevent them from surviving beyond a few minutes or hours, or in cases where they are born lifeless. The focus is not only on the neonatal patient, but also on supporting the mother and close relatives. The primary goal is to preserve the dignity of newborns and to provide them with the greatest possible comfort during their transition to the end of life.

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How to Cite
Ricaud Vélez, I. A. ., Hanhausen Estrada, I. ., & Phillibert Rosas, S. . (2024). Perinatal palliative care: a comprehensive approach. Medicina Y Ética, 35(4), 1098–1136. https://doi.org/10.36105/mye.2024v35n4.04
Section
Articles
Author Biographies

Ignacio A. Ricaud Vélez, Médico general. XIMA Health & Wellness, Ciudad de México, México.

General Practitioner. XIMA Health & Wellness, Mexico City, Mexico.

Inés Hanhausen Estrada, General Practitioner. Hospital Español, Mexico City, Mexico.

General Practitioner. Hospital Español, Mexico City, Mexico.

Santiago Phillibert Rosas, General Practitioner. Epilepsy Clinic, National Institute of Neurology and Neurosurgery, Mexico City, Mexico.

General Practitioner. Epilepsy Clinic, National Institute of Neurology and Neurosurgery,
Mexico City, Mexico.

References

Sumner LH, Kavanaugh K, Moro T. Extending palliative care into pregnancy and the immediate newborn period: state of the practice of perinatal palliative care. J Perinat Neonatal Nurs [Internet]. 2006; 20(1):113-6. Disponible en: http://dx.doi.org/10.1097/00005237-200601000-00032

Cortezzo DE, Ellis K, Schlegel A. Perinatal palliative care birth planning as advan- ce care planning. Front Pediatr [Internet]. 2020; 8. Disponible en: http://dx.doi.org/10.3389/fped.2020.00556

Crawford A, Hopkin A, Rindler M, Johnson E, Clark L, Rothwell E. Women’s experiences with palliative care during pregnancy. J Obstet Gynecol Neonatal Nurs [Internet]. 2021; 50(4):402-11. Disponible en: http://dx.doi.org/10.1016/j.jogn.2021.02.009

Del Rio I, Palma A. Cuidados paliativos historia y desarrollo. 2007. https://cuidadospaliativos.org/uploads/2013/10/historia%20de%20CP.pdf

Carter BS. An ethical rationale for perinatal palliative care. Semin Perinatol [Internet]. 2022; 46(3):151526. Disponible en: http://dx.doi.org/10.1016/j.sempe- ri.2021.151526

Hoeldtke NJ, Calhoun BC. Perinatal hospice. Am J Obstet Gynecol [Internet]. 2001; 185(3):525-9. Disponible en: http://dx.doi.org/10.1067/mob.2001.116093

Kain VJ, Chin SD. Conceptually redefining neonatal palliative care. Adv Neona- tal Care [Internet]. 2020; 20(3):187-95. Disponible en: http://dx.doi.org/10.1097/ ANC.0000000000000731

Narro JR, Ancer J, García-Moreno J. Guía del Manejo Integral de Cuidados Paliativo. 2018; Disponible en: https://www.dof.gob.mx/nota_detalle.php?codigo=5534718&fecha=14/08/2018#gsc.tab=0

Winyard A. The Nuffield Council on Bioethics Report — Critical care decisions in fetal and neonatal medicine: Ethical issues. Clin Risk [Internet]. 2007; 13(2):70-3. Disponible en: http://dx.doi.org/10.1177/135626220701300208

Panamerican Health Organization (PAHO). Nacidos con defectos congénitos: historias de niños, padres y profesionales de la salud que brindan cuidados de por vida [Internet]. Paho.org. [citado 27 de noviembre de 2022]. Disponible en: https://www.paho.org/es/noticias/3-3-2020-nacidos-con-defectos-congenitos-historias-ninos-padres-profesionales-salud-que

Panamerican Health Organization (PAHO). Defectos congénitos. La importancia de un diagnóstico temprano [Internet]. Paho.org. [citado 27 de noviembre de 2022]. Disponible en: https://www.paho.org/es/noticias/3-3-2023-defectos-congenitos-importancia-diagnostico-temprano

Zaldivar A. Informe Epidemiológico de Cierre 2019. Ciudad de México; 2019. Disponible en: https://www.gob.mx/cms/uploads/attachment/file/541110/InformeDM-T21erTrim2019.pdf

Zaldivar A. Informe de Vigilancia Epidemiológica 2021. Ciudad de México; 2021. Disponible en: https://www.gob.mx/cms/uploads/attachment/file/745354/PanoEpi_ENT_Cierre2021.pdf

Wood F, Simpson S, Barnes E, Hain R. Disease trajectories and ACT/RCPCH categories in pediatric palliative care. Palliat Med [Internet]. 2010; 24(8):796– 806. Disponible en: http://dx.doi.org/10.1177/0269216310376555

Martín-Ancel A, Pérez-Muñuzuri A, González-Pacheco N, Boix H, Espinosa Fernández MG, Sánchez-Redondo MD, et al. Perinatal palliative care. An Pediatr (Engl Ed) [Internet]. 2022; 96(1):60.e1-60.e7. Disponible en: http://dx.doi.org/10.1016/j.anpede.2021.10.003

Instituto Belisario Domínguez. Mi cuidado, Mi derecho. Cuidados Paliativos Pediátricos. Ciudad de México: Senado de la República; 2021.

Comas Ferrer C. Cuidados paliativos perinatales: mejorar el afrontamiento y el duelo de las familias que pierden a un neonato con un diagnóstico fetal limitante. [Internet]. 2022 [citado 27 de noviembre de 2022]. Disponible en: http://dspace.uib.es/xmlui/handle/11201/157786

Martín-Ancel A, Mazarico E. Afrontar el final de la vida cuando la vida empieza: cuidados paliativos perinatales. Rev iberoam bioét [Internet]. 2022; (18):01-14. Disponible en: http://dx.doi.org/10.14422/rib.i18.y2022.001

Teefey CP, Hertzog J, Morris ED, Moldenhauer JS, Cole JCM. The impact of our images: psychological implications in expectant parents after a prenatal diagnosis. Pediatr Radiol 2020; 50:202833. Disponible en: https://doi.org/10.1007/s00247-020-04765-3

González C, Méndez J, Romero JI, Bustamante J, Castro R, Jiménez M. Cuidados paliativos en México. Rev Med Hosp Gen Méx. 2012; 75. Disponible en: https://www.researchgate.net/publication/359861521_Cuidados_Paliativos_en_Mexico

Santos ZT-DL, Rodríguez FP-, Corona T. Investigación sobre Cuidados Paliativos en México. Revisión Sistemática Exploratoria [Internet]. Medigraphic.com. [cited 2024 Apr 02]. Disponible en: https://www.medigraphic.com/pdfs/revmexneu/rmn2018/rmn182h.pdf

Kain VJ. Perinatal Palliative Care: Cultural, Spiritual, and Religious Considerations for Parents. What Clinicians Need to Know. Front Pediatr 2021; 9. Disponible en: https://doi.org/10.3389/fped.2021.597519

Garten L, Globisch M, von der Hude K, Jäkel K, Knochel K, Krones T. Palliative care and grief counseling in Peri- and neonatology: Recommendations from the German PaluTiN group. Front Pediatr [Internet]. 2020; 8:67. Disponible en: http://dx.doi.org/10.3389/fped.2020.00067

Engelder S, Davies K, Zeilinger T, Rutledge D. A model program for perinatal palliative services. Adv Neonatal Care [Internet]. 2012; 12(1):28-36. Disponible en: http://dx.doi.org/10.1097/ANC.0b013e318244031c

Ziegler TR, Kuebelbeck A. Close to home: Perinatal palliative care in a community hospital. Adv Neonatal Care [Internet]. 2020; 20(3):196-203. Disponible en: http://dx.doi.org/10.1097/ANC.0000000000000732

Kilby MD, Pretlove SJ, Bedford Russell AR. Multidisciplinary palliative care in unborn and newborn babies. BMJ [Internet]. 2011 [citado 6 de abril de 2024]; 342(apr 11 1):d1808–d1808. Disponible en: https://www.bmj.com/content/342/bmj.d1808

de Barbeyrac C, Roth P, Noël C, Anselem O, Gaudin A, Roumegoux C. The role of perinatal palliative care following prenatal diagnosis of major, incurable fetal anomalies: a multicentre prospective cohort study. BJOG [Internet]. 2022; 129(5):752-9. Disponible en: http://dx.doi.org/10.1111/1471-0528.16976

Côté-Arsenault D, Denney-Koelsch E. “My baby is a person”: parents’ experiences with life-threatening fetal diagnosis. J Palliat Med [Internet]. 2011; 14(12):1302- 8. Disponible en: http://dx.doi.org/10.1089/jpm.2011.0165

Kuebelbeck A. “Yes to Life” and the Expansion of Perinatal Hospice. Perspect Biol Med 2020; 63:526-31. Disponible en: https://doi.org/10.1353/pbm.2020.0041

Cobb AD. Christian Humility and the Goods of Perinatal Hospice. Christian Bioethics: Non-Ecumenical Studies in Medical Morality. 2021; 27:69-83. Disponible en: https://doi.org/10.1093/cb/cbaa017

Tewani KG, Jayagobi PA, Chandran S, Anand AJ, Thia EWH, Bhatia A. Perinatal Palliative Care Service: Developing a Comprehensive Care Package for Vulnerable Babies with Life Limiting Fetal Conditions. J Palliat Care 2021; 37:471-5. https://doi.org/10.1177/08258597211046735

Veldhuijzen van Zanten S, Ferretti E, MacLean G, Daboval T, Lauzon L, Reuvers E. Medications to manage infant pain, distress and end-of-life symptoms in the immediate postpartum period. Expert Opin Pharmacother 2022; 23:43-8. https://doi.org/10.1080/14656566.2021.1965574