Role and activities of a Bioethics Committee within a Palliative care Center: the experience of Antea

Main Article Content

M.T. Iannone, Lic.
F. Bordin, Dr.
C. Magnani, Dr.
C. Mastroiani, Lic.
G. Casale, Lic.
D. Sacchini, Lic.

Abstract




The article deals with the activities of the “Antea” Ethics Commit- tee (CB-Antea), a non-profit association dedicated to providing free care for advanced/terminal patients. CB-Antea was establis- hed in 2008, aimed to protect and promote the values of the hu- man person in all scientific and charitable activities that take place within the Association.





This activity is expressed through the formulation of behavioral guidelines and the expression of advices for addressing issues in palliative medicine and care; the careful evaluation of the princi- ples and standards that underline a good health professional-pa- tient relationship, through information and consent to medical pro- cedures that take place in Antea.


This body has been proposed, from the outset, as the place for sharing the care process, in which experts from different discipli- nes could help support both the medical staff to assume a shared ethical professional style and the patients and their families to bet- ter address all potentially conflicting issues.


The CB-Antea has an advisory role for the Antea healthcare work and administration. The main activities are: training in Bio- ethics; clinical ethics consultation; support for designing and con- ducting of Antea clinical-social research projects; development of internal behavioral guidelines and recommendations.


From 2008, CB-Antea is devoted to some important issues, such as the drafting of Antea Charter of Values; the promotion of Antea as Research Center; the production of protocols, operating procedures and material easily accessible for clinical staff; su- pport for the preparation of research projects; revaluation of infor- mation processes and consent.







Downloads

Download data is not yet available.

Article Details

How to Cite
Iannone, M., Bordin, F., Magnani, C., Mastroiani, C., Casale, G., & Sacchini, D. (2014). Role and activities of a Bioethics Committee within a Palliative care Center: the experience of Antea. Medicina Y Ética, 25(2), 181–202. Retrieved from https://publicaciones.anahuac.mx/index.php/bioetica/article/view/704
Section
Articles
Author Biographies

M.T. Iannone, Lic., Bioethics Committee of the Antea Palliative Care Center, Rome

biojurista and president of the Committee

F. Bordin, Dr., Bioethics Committee of the Antea Palliative Care Center, Rome

Doctor

C. Magnani, Dr., Bioethics Committee of the Antea Palliative Care Center, Rome

Doctor

C. Mastroiani, Lic., Bioethics Committee of the Antea Palliative Care Center, Rome

Nurse

G. Casale, Lic., Bioethics Committee of the Antea Palliative Care Center, Rome

biojurist and president of the Committee

D. Sacchini, Lic., Bioethics Committee of the Antea Palliative Care Center, Rome

Bioethicist

References

1 O ́HARE DG. Principles of medical ethics in supportive care: a reflection. Support Care Cancer 2004; 12:86-90
2 BORSELLINO P. Le questioni etiche del fine vita. Lettura magistrale. 2010 Terzo congresso regionale SICP Sicilia (acceso del 15.12.2012, en: http://www.comitato- finevita.it/document/?id=40).
3 COMITATO ETICO PRESSO FONDAZIONE FLORIANI. Carta dei diritti dei morenti (23.06.1999) (acceso del 15.12.2012, en: http://www.fedcp.org/ Carta%20Diritti%20Morenti.pdf).
4 NATIONAL HOSPICE AND PALLIATIVE CARE ORGANIZATION. Developing a hospice ethics committee. Arlington, VA: NHPCO; 1998.
5 UK CLINICAL ETHICS NERTWEORK. Practical Guide to Clinical Ethics Support. Co- ventry 2004 (acceso del 10.12.2012, en: http://www.ukcen.net/index.php/ education_resources/support_guide/section_a_clinical _ethics_ support).
6 BORSELLINO P. Perché il "Comitato per l'etica di fine vita deve continuare la sua attività". Milano 2006 (acceso del 10.12.2012, en: http://www.comitato-finevita.it/ document/?id=13).
7 Cfr. el sitio web de la Asociación Antea (acceso del 20.3.2013, en: http:// www.antea.net/).
8 También en el sitio web cfr. la sección específica (acceso del 20.3.13 en: http:// www.antea.net/index.php /chi-siamo/associazione/comitato-bioetica.html).
9 ICH-GCP. International Conference on Harmonization of technical requirements for registration of pharmaceuticals for human use (acceso del 20.3.2013, en: http:/ /ichgcp.net/it/) recibidos en Italia con Decreto Ministerial (DM) 15 Julio 1997 n. 162: Recepimento delle linee guida dell' UE della buona pratica clinica nell'esecuzione delle sperimentazioni cliniche dei medicinali. Gazzetta Ufficiale n.191 del 18 Agosto 1997. Cfr. además, el Decreto Legislativo (DL) 24 Junio 2003 n. 211: Actuación de la directiva 2001/20/CE relativa a la aplicación de la buena práctica clínica en la ejecución de las experimentaciones clínicas de medicamen- tos para uso clínico. Gazzetta Ufficiale n. 184 del 9 Agosto 2003.
10 WHALEN GF. KUTNER J. BYOCK I Y COLS. Implementing palliative care studies. J Pain Symptom Manage. 2007; 34 (1 s): S40-S48.
11 Nuestra traducción del inglés (WORLD MEDICAL ASSOCIATION (WMA). Declaration of Helsinki. Ethical Principles for Medical Research Involving Human Subjects (Helsinki, Junio 1964, enmendados por la 59a Asamblea general de la WMA, Seoul, Corea, Octubre 2008) (acceso del 20.03.2013, en: http://www.wma. net/en/ 30publications/10policies/b3/).
12 Cfr. los ya recordados DM 15 de julio de 1997 n.162 y DL 24 de junio de 2003 n. 211.
13 Cfr. Decreto Ministerial 18 de marzo de 1998. Linee guida di riferimento per l'istituzione e il funzionamento dei comitati etici. Gazzetta Ufficiale n. 122 del 28 de mayo de 1998 y Decreto Ministeriale 12 Maggio 2006. Requisiti minimi per l'istituzione, l'organizzazione e il funzionamento dei Comitati etici per le sperimen-
tarioni cliniche dei medicinali. Gazzetta Ufficiale n. 194 del 22 de agosto de 2006. 14 Cfr. el sitio web de la Azienda Unità Sanitaria Locale RM E (acceso del 20.03.2013, en: http://www.asl-rme.it/index.php?p=1907).
15 SOCITÀ ITALIANA DI CURE PALLIATIVE. GRUPPO DI STUDIO SU ETICA E CULTURA. AL TERMINE DELLA VITA. Raccomandazioni della SICP sulla Sedazione Terminale/Se- dazione Palliativa. Octubre 2007 (acceso del 10.12.2012, en: http://www.sicp.it/si- tes/default/files/Sedazione.pdf).
16 CHERNY N, RADBRUCH L FOR THE BOARD OF THE EUROPEAN ASSOCIATION FOR PA- LLIATIVE CARE. European Association for Palliative Care (EAPC) recommended fra- mework for the use of sedation in palliative care. Palliat Med. 2009; 23 (7): 581- 593; KIRK TW, MAHON MM FOR THE PALIATIVE SEDATION TASK FORCE OF THE NATIO- NAL HOSPICE AND PALLIATIVE CARE ORGANIZATION ETHICS COMMITTEE. National Hos- pice and Palliative Care Organization (NHPCO) position statement and commen- tary on the use of palliative sedation in imminently dying terminally ill patients. Jo- urnal of Pain and Symptom Management 2010; 39 (5): 914-923.
17 ELLERSHAW J, WARD C. Care of the dying patient: the last hours or days of life. BMJ 2003; 326(7379): 30-34.
18 SILVEIRA MJ, DI PIERO A, GERRITY MS ET AL. Patients' knowledge of options at the end of life. Ignorance in the face of death. JAMA 2000; 284 (19): 2483-2488.